Papers from the Preemie-L conference 2001 When life begins in the NICU: Understanding the effects of prematurity on the child and the family , Estes Park Colorado, August 24-26 2001
Papers from the second TAF/Preemie-L conference, Directions for the 21st century: Bridging the Gap between Parents and Professionals, Chicago, Ill. July 29 - 31 1999
Papers from the first The Alexis Foundation/Preemie-L conference 1998 Empowering Parents of Premature babies: A conference for parents and professionals Detroit, Ill.
Comeunity: Premature baby - Premature child provides articles, resources and support from parents and doctors for parents of children born prematurely. Mailing list, parenting your premature child, long-term impacts of prematurity, special needs of children, celebrating and coping with prematurity, and internet postcards.
Preemie-L Members Resource Websites Allison Martin's listing of websites of Preemie-L listserve members offers references to information on premature children and disabilities, listings of the many preemie websites from around the world, and other opportunities to reach out to other preemie parents.
Sites of baby/infant/preemie interest on and off the Internet at Tommy King's Cyber Nursery compliled by Clarke King. Tommy's Cyber Nursery was the one of the first preemie sites on the web, and remains an outstanding source of information about all things related to prematurity.
Imagine - stories from the Preemie-L mailing list. The "Imagine.." thread began in 1997 and was revisited in 1999 when Dianne Maroney asked Preemie-L listmembers to describe their own experience of prematurity by finishing the sentence "Imagine.." The Imagines were originally intended for a presentation to medical professionals but have become in their own right a powerful inspiration for both writers and readers of all backgrounds.
For Parents of Preemies: Answers to commonly asked questions Developed by Jane E. Brazy, MD., Neonatologist. This site has grown to become an invaluable resource for parents. The information provided is friendly, accessible and well-organized.
A Spanish language version of this site is available at http://www2.medsch.wisc.edu/childrenshosp/Preemie_Parent_Sp/spindex.html
Photo Gallery A great collection of photos of the Preemie-L babies, organized by gestational age. The site is maintained by Sheila Sanders.
Online communities for information exchange and peer support: a case study The Preemie-L story as presented to the Communities Networking/Networking Communities Conference, Melbourne, 1998
An Introduction to Extremely Premature Babies An information sheet for parents by neonatologist Dr Doug Derleth,
An Outcome by Gestational Age Table for parents of extremely premature infants A model for providing parents with outcome information by neonatologist Dr Guan Koh, and author Helen HarrisonPreemie Resources, a comprehensive bibliography compiled by Mary Searcy
Preterm Labor Resources - compiled by Mary Searcy
Helen Harrison's observations on prematurity Discussions by Helen Harrison, author of The Premature Baby Book, on the prematurity support internet mailing lists: Preemie-L and Preemie-child. This wonderful site includes a selected bibliography of the long-term effects of prematurity.
Mayo Clinic's web site Premature babies: understanding health risks contains good medical information about prematurity.
A new web site from Emory Pediatrics which provides information on issues related to the development of infants and children born prematurely.
Feeding Issues for Infants & Young Children bulletin board. If you have a problem with feeding your preemie, or have advice and experience to share with other families, check out this new resource, created by Laura Williams.
Premie Press is a new online journal for those interested in the development of premature babies and children
Children's Medical Ventures, Inc. provide a library of abstracts for articles which support the developmental care of preterm infants, and an online catalogue of products for the care of premature babies.
The Netiquette Guide for Support Mailing Lists is a helpful guide to the effective and considerate use of online communication, written by Allison Martin. Find out how you can increase the value of your contribution to Preemie-L and other support listserves while avoiding some of the common pitfalls of email based communication.