Preemie-L is a moderate volume list for parents of babies born 6 weeks or more before due date, and family and friends. Contributors to the list include parents and family of premature children of all ages, medical specialists and NICU staff, authors and adult ex-preemies.
You must be subscribed to post to Preemie-L. To subscribe email
majordomo@lists.vicnet.net.au.
In the body of the message, type subscribe preemie-l your email address (e.g. annec@vicnet.net.au)
Subscription requests are approved by the listowner.
Listowners: Anne Casey and Gary Hardy
Website: http://www.preemie-l.org
Austprem provides an opportunity for Australian and New Zealand families and caregivers to discuss the experience of prematurity in a local context, via a web-based board or scheduled online chats.
To subscribe to Austprem, you must first register with MC2 and then select Austprem from the list of available forums. Membership requests are approved by the listowner
Website: http://www.austprem.org.au
Preemie-child is small support group for parents of children born prematurely who are now school age (or older). Children who are born very prematurely may have medical, physical and psychological impacts which continue to require attention as they enter school and society.
Types of special needs which may be discussed on this listserv include: asthma, allergies, eye damage (ROP, glasses, myopia, blindness), speech delays and difficulties, feeding problems, ADHD (attention disorders and/or hyperactivity), learning disabilities, cerebral palsy and muscle tone issues, fine motor problems impacting handwriting or other skills, gastrointestinal issues, hearing loss, and other physical and mental issues.
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU
Instructions: In the body of your email, send the message subscribe preemie-child
your full name (e.g.Anne Casey)
You will need to send an introduction before your subscription is approved by the listowner.
Listowners: Allison & Rick Martin
Preemie-child also has a discussion forum at http://cgi.comeunity.com/cyberfam/board/index.cgi
Website: http://www.comeunity.com/
Feeding problems list and bulletin board
Some of the most common enquiries we see on Preemie-L are requests for information and
advice about feeding problems. If you are experiencing these kinds of problems with your
preemie now, or have advice and experience to offer other families, check out the
Feeding Problems list and Forum.
To subscribe to the Feeding Mailing List: send an e-mail to
feeding-subscribe@egroups.com
Enter your email address and/or register with onelist if necessary.
All subscriptions requests are automatically processed and a confirming email will be sent to you.
Listowner: Laura Williams
Click here to visit the Feeding Issues for Infants & Young Children message board
Website:
Small Wonders ~ Preemie Place
Post-Preemie Pregnancy Group
Post-Preemie Pregnancy Group is the email discussion group about being pregnant again after
having a premature birth. A lot of moms who previously had preemies at 22 to 36 weeks
gestation describe their subsequent pregnancies as "I held my breath for 40 weeks".
But there is a lot of things that a mom in this situation wish they could do and want
to talk about so this is the place.
Thinking about another child, actually being pregnant, or actual outcomes after
having a prior preemie are all open for discussion on PPPG where you will find others
with common concerns. The list is not meant to be medically oriented, but more of a
place to share with others.
The list is not moderated but you must be subscribed to post to the list.
To join: send an email to pppg-subscribe@egroups.com telling us a little about yourself and requesting to join.
Listowner: Melissa Armstrong
The PreemieTimes list is for the light hearted discussion of every day issues in the life of a preemie and his/her family or friends. To subscribe to Preemietimes, send an email to preemietimes-subscribe@egroups.com
Listowner: Ami Logan
A Swedish discussion list created to bring families with premature babies
closer to each other. Norway, Denmark and Finnish/Swedish are also welcome!
Website: http://hem.passagen.se/vitidiga/maillista.htm
A Swedish discussion list for families with premature preschoolers and/or
schoolchildren. Norwegian, Danish and Finnish/Swedish are also welcome!
Website: http://hem.passagen.se/vitidiga/ungapreemie.htm
A discussion list in French for parents of premature babies.
To subscribe send your message to LISTSERV@LISTS.MCGILL.CA
In the body of your message, write subscribe prema-l Firstname Lastname
Vereniging van Ouders van Couveusekinderen (VOC)
A group for parents whose children spent time in an incubator (for parents
of preemies but also for parents who's children were so sick after the
birth of their baby that they had to be hospitalised). The language is Dutch.
Website: http://www.xs4all.nl/~vockind