Parents of Premature Babies (Preemie-L)
Mission Statement

The core purpose of Preemie-L is:

• to support families of premature babies while the babies are in hospital and as they grow up

We aim to do this by:

• providing the Preemie-L mailing list and Discussion Forum

• producing a print on demand newsletter with highlights of discussions from the group, so that those without internet access can see that there are others with similar concerns,

• publishing online information and support resources for families of premature babies and the professionals who work with them.

• supporting the provision of access to Preemie-L in hospitals with NICUs,

• encouraging developmentally supportive family-centered care in newborn intensive and special care nurseries,

• encouraging hospitals to compile and make available outcome information so that parents can make informed decisions about the care and treatment of their premature babies,

• providing a window into the workings of NICUs through the contribution of medical personnel,

• encouraging research into the causes and consequences of prematurity,

• providing a forum for the discussion of medical and ethical issues relating to the comfort and compassionate care of preterm infants.