The Alexis Foundation for Premature Infants and Children
and
Parents of Premature Babies (Preemie-L)

are pleased to present the papers of their second joint conference

Directions for the 21st Century
Bridging the gap between parents and professionals
preemie logo

held in Chicago, July 30-31, 1999



Welcome Address by Anne Casey, co-founder of Parents of Premature Babies (Preemie-L)

Keynote Address by Frank Manginello, M.D., The importance of strong communication between parents and professionals while in the neonatal unit and after discharge (available soon)

Imagine Insights on the emotions of professionals as they provide medical care and families as they cope with an overwhelming crisis by Dianne Maroney RN

Professionals Helping Parents by Mara Tesler Stein, Psy.D.

Professionals Helping Parentsby Michael T. Hynan, Ph.D

Advocacy for children with long-term medical issues by Allison Martin, in two parts: Part One: Parent Advocates: Born in the NICU and Part Two: Roles of Effective Parent Advocates.

Keynote Address by T.H.H.Koh, M.D. Promoting partnership with parents

Imagine ... Social support for parents of babies in a NICU : A Model of Social Support for Parents of Pre-term Infants in a Neonatal Intensive Care Unit by Edward Martinelli

Ethical and Humane Decision-Making in the NICU: Parents and Doctors Collaborating in the Gray Zone A brief outline of the Colorado Collective for Medical Decisions (CCMD) Neonatal Guidelines which were written to encourage discussion between health care providers and parents about ethical and humane decisions in the NICU by Deborah L. Davis, Ph.D.

After Discharge: Communicating With a New Set of Professionals by Michael Tsangaris, M.D. (available soon)

After Discharge: Communicating With a New Set of Professionals by Sheena Carter, Ph.D (available soon)

Concluding address by Elaine Sayers, Director of The Alexis Foundation (available soon)

For photos, accounts of the conference and a few giggles check out Virtual TAF/Preemie-L conference, July 29 - 31 hosted by preemies.org


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